This week the MND YOC (the Year of Care commissioning tool) got prominent exposure as a featured example of condition-specific good practice in the National Audit Office’s End of Life Care report. The Public Accounts Committee (PAC) will now conduct hearings on the NAO report on 17 December – open to the public – and then prepare its own report with recommendations for Government (to which the Government must make a published response).
There is something very satisfying about seeing work that MAC partners and associates have laboured long over for clients getting noticed in the right places. So it is with the MND YOC. Launched in the summer of 2008 after almost two years of work, it is now available electronically to all in the National Library of Health’s specialist neurological library, together with the “Learning from Leeds” report on how the views of people with MND, carers and staff made a real difference to the final version of the tool for commissioners.
The witnesses before the PAC will be the CEO of the NHS, David Nicholson, and the “cancer czar”, Prof Mike Richards. Given the long-standing interest MPs have in the inequitable provision of end of life services around the country and the well-deserved tenacious reputation of the PAC under its chairman Edward Leigh MP, the encounter on the 17th of December should be worth watching. Expect to see a bit of squirming.
MAC is delighted to have helped the MND Association make a contribution to stirring up greater interest in this subject and we will be following the PAC’s work on end of life services closely.