Strange. Somehow this got published even though it was never officially launched and was still being worked on when I was last involved with it in April this year. Was I asleep? I think LINk put it out anyway. There is a feature on it on the LINk site dated last week.
And I have been having correspondence (with nobody you will know dear reader) about why this was NOT published yet and what could be done to break the logjam. It really is Alice in Wonderland I think.
….Put together these two versions give us an interesting picture – from the standpoint of what interests the user and potential patient – about access, advance appointments and other key issues about “what good looks like” across the 46 practices.
There are two surgeries with a 97% satisfaction score – one is our old friends at the Balham Park Surgery where Partners Craig and Moore helped Natalie Goldsmid-White the Practice Manager set up their Patient Liaison Group many moons ago now.
Are we seeing the first hesitant and rather disorganised steps to getting people aware of and interested in using good data to unlock the information key to better healthcare for themselves? Is the real revolution in the health service happening while pseudo-battles range about structures and processes which citizens, patients, carers are learning how to by-pass? Today’s paper ( 7th July 2011) tells us that more clinical information on death rates for specialist surgeons and also prescribing rates for GPs are to be published for the first time from December. The usual ‘doc orgs’ are worried about ‘simplistic league tables’. Wandsworth are to be congratulated for being one of less than 10 PCTs to give this information now. And the word is that the Department of Health plans to stop funding audits which do not allow the public to make comparisons
I was given a context for this triumph for the march of openness even if it was achieved by unknown and back to front means by looking at a couple of TED chats on how the web is moving on from text to data. None other than the great guru T B-L himself called for “Raw Data Now”. Data is relationships and understanding the power of the links took me to another TED talk where Dave Debronkart talked about the patient as the great underused resource. He found a cure for his cancer thanks not to doctors but expert patient groups who knew where the data was and could use it and point him to it. He harked back to hippy history and the medical editor of The Whole Earth Catalog (whose got my copy?) who is still going strong – shorter hair, bigger gut – and who recently compiled the profile of the e-patient in the spirit of the subtitle of the Catalog – access to tools.
The E-patient is:
and the key to all this is access to data which will be accessible to us across all platforms. Just as T B-L used the language of html to make documents accessible, we are now seeing the invention of a similar platform to link data. The crucial distinction is between the data and information. Information is edited and tailored by the author or editor to make their point: data is raw, unfiltered and unrefined and the new epatient can use it how they like.
Will the citizens of Wandsworth use the GP data? How will the new commissioners publish their data – will they show the data to foster participation in their decisions or will they just give us the information that supports their decisions?
The Moore Adamson Craig Partnership supports user and public participation, trains lay representatives and develops responsive health, care and education organisations. We are ready to work with and support all those who want to make sense and a success of the new structures of patient and public engagement within the new arrangements for health and social care commissioning and providing. Feel free to contact us to discuss the opportunities.